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tombert · 2 months ago
I've had tinnitus in my left ear for about six months now. I was hoping it was the result of an earwax impaction or something, but after having several specialists look at my ears, test my hearing, and getting an MRI to check for tumors, the overwhelming medical consensus of the cause appears to be "I dunno", and at this point I have given up on it being temporary.

About 95% of the time, I can fairly easily just tune it out and it's no different than any other background noise. Living in NYC helps, there's a fair amount of constant background noise even in the best of times. I've found that finding 10-hour videos on YouTube of TV static at a low volume can be helpful for the remaining 5%.

Still I would really prefer it wasn't there. The ringing in my left ear is still annoying, and I'm only in my mid 30's, so assuming an average lifespan I have anywhere from 40-60 years left to enjoy this constant ringing.

I'll play with this thing to see if it helps.

guilamu · 2 months ago
A message of hope.

I got mine in my 30's too. The first week I thought I was going crazy, and this was the end of my life. I was shocked, I couldn't go to work for a whole week.

I then saw a doctor who said to me: "Man, I've got tinnitus since 20 years and I barely hear it anymore. The more you accept it, the more it'll fade."

A decade later, my own experience is exactly this. I accepted it as one of the body malfunctions that comes with age for everybody. I barely hear it anymore except in extremely low noise situations and it doesn't bother me at all.

I wish you well.

bsimpson · 2 months ago
I've always been someone who hears high pitched noises that "normal" people don't. I'm also in my 30s, and I'm sure those "teenage alarms" in Japan would work on me. I was the one who would walk up to a CRT and turn it off when everyone else thought it already was.

What helped me accept (and ignore) tinnitus was realizing that I had already grown accustomed to tolerating that sound indoors. When's it's something you have no agency over (like "it's an old house and the wires just make that sound sometimes"), you learn it's part of the environment.

Accepting it as part of the environment gets you past the "OMG my body is ruined forever" anxieties and back to normal life.

otherme123 · 2 months ago
For me, after 20'ish years with tinnitus, the only thing that brings the buzz to the foreground is reading/hearing the word "tinnitus".
glimshe · 2 months ago
It's very much like eye floaters. They are always there, but you can tune them out most of the time.
gblargg · 2 months ago
I also thought I would go crazy when mine started after some ear infections in my 20s. It's gotten a lot worse over time but I mostly only notice if I think about it, and when I'm laying down to sleep, and when I wake up (it seems so strong). I've slept with white noise all my life, and without that I the tinnitus would definitely disturb my sleep.
drewcon · 2 months ago
Same exact story for me.

Audiologist suggested treating it like a rock in your shoe. At the time seemed like impossible advice but now I just live with it and it’s 100% fine.

Also the idea that it is actually made worse by anxiety was a game changer for me. Literally, “don’t worry about it” is the exact right advice.

spoiler · 2 months ago
I've had tinnitus since... At least my early 20s. Or that's the first time I found out about the concept. Until that point I assumed it's background noises everyone experiences.

I only notice it when it changes abruptly (very rare), but otherwise I just tune it out

HippyTed · 2 months ago
I have had it since I was a teenager like 30 years ago. Honestly, I do not notice it unless someone points it out. Yes it is always there but there is nothing I can do about it so I don't worry about it.
Crontab · 2 months ago
I've had it for four years and I don't notice it most of the time anymore. But for reason just reading about it makes me notice it.
radium3d · 2 months ago
Yeah, it just blends into the background for me, I've had it for decades. I blame the loud music as a kid.
senectus1 · 2 months ago
same here. now 51. I reckon i got it in my early 20's.
Aurornis · 2 months ago
Once the major (though exceedingly rare) problems have been ruled out, the best course of action is to start learning to live with it.

It’s not what anyone wants to hear, but it’s the pragmatic approach that works best from everything I’ve seen.

The people who become involved in tinnitus forums, support groups, and chasing experimental treatments think they’re helping themselves but they’re really only bringing it to top of mind over and over again.

It feels frustrating to give up and disconnect from all things tinnitus related on th internet, but disconnecting is exactly what helps with the process of letting it fall into the background of your life. Constantly bringing it to the foreground and reading about it only makes it worse.

xnyan · 2 months ago
This is how it worked for me. I’ve had it in my left ear for decades, the last time I thought about it was the last time I read an article about tinnitus on hacker news.
pfortuny · 2 months ago
Meditation, despite being a common trope, has helped me accept it too.
diego_sandoval · 2 months ago
In my case, this mindset + SSRIs have helped me tremendously.

I didn't want to depend on a drug, but after getting into a really bad, quasi-suicidal mental state, I went to the psychiatrist. I've been on escitalopram for 4 months and it has really helped reduce the distress associated with tinnitus in like 80%. Making an effort to not think about it has also helped.

I hope to stop taking the drug at some point and see if the mental improvement persists.

sixtyj · 2 months ago
Yes, the best way is to let it fall into background. Just keep going.
reify · 2 months ago
I too had exactly the same constsnt ringing in my left ear.

I could not get to sleep because the noise was so loud and intense.

It reminded me of those spy films where they torture someone playing loud heavy metalcore all day and night.

I had a X-ray, ultra-sound and two Consultants had a look.

Both said that there was nothing wrong with my ear. No ear wax, no damage, no issues at all.

They both mentioned that tense facial and neck muscles may be a cause.

As well as the constant ringing, there is a sound like a central eating system, thumping and groaning away, in both my ears too. I initially thought the thumping and groaning was the Mrs snoring.

I bought some earloops thinking my ears were too sensitive and I was somehow hearing noises from the houses down the road and the motorway traffic 3 miles away. to no avail, even with the earloops blocking all exterior noise, I still had the high pitched and low piched internal noises.

I found a way to reduce the noise.

I was laying in bed one night and I was relaxing my jaw when I noticed that if I opened my mouth and let my jaw hang loose all the noises stopped.

So over a month or so I tried to train my jaw to be less tense and more relaxed.

For me it worked.

it was my jaw.

I'm 69, so have a few less years years than your good self

BobbyTables2 · 2 months ago
I first got pretty bad tinnitus about 10 years ago while still fairly young. Didn’t go to concerts, shoot guns, hammer nails, or any activity typically associated with hearing loss.

At one point it was so loud, it would drown out the sound of a dryer when right next to it.

This was party from impacted earwax but still pretty bad after cleaning.

Hearing test showed substantial high frequency loss (well above speech frequencies)

A few suggestions:

1) Listening to light music helped me stop focusing on it.

2) Tried Taurine. Unsure if it helped, didn’t hurt. Make sure you aren’t low on Vitamin D. That alone causes enough other problems too.

3) Make sure you don’t clench teeth or have dental issues. I think that might be able to aggravate the nerves.

It never went fully away but I’m no longer overtly conscious, just faint in the background. Always aware of light pressure/muffled feeling in affected ear. Changes were slow and gradual but did happen. Doesn’t bother me much anymore. Do miss the “sound of silence” but light background music while working is enjoyable .

victornomad · 2 months ago
I started having tinnitus in both ears 10 months ago.

I don't know the exact cause, but I started noticing it during a job-related burnout and a series of work-related events that significantly increased my stress levels.

It was so bad to the point I had to abruptly quit my job (FYI, freelancing without a safety net sucks).

My doctor gave me pills to help calm my brain and the noise, especially during the night. I also have hypersensitivity, so having a constant noise ringing was not ideal :/

Luckily my ENT doctor recommended that I do multiple things at the same time:

    - tinnitus retraining therapy (TRT), listening to white noise ~4 hours a day
    - going to a therapist
    - daily meditation
    - daily exercise
    - reducing salt, chocolate, coffee, etc.
The hissing is still there, but I can now ignore it most of the time.

I started to see life a bit differently since then. Things that disrupt your life can happen so suddenly...

I'm still trying to find a job, but I lost a lot of confidence and developed a bit of a trauma since I don't want to experience burnout again :/

mouse_ · 2 months ago
You can do it.

It will be easy once you start.

butlike · 2 months ago
Did they really suggest white noise? I imagine it was pink or brown noise? As I understand it, white noise is the only damaging one since there's no "falloff" to the PWM, it's just "white" or "black," so the spikiness of the modulation can be damaging.
tptacek · 2 months ago
If it helps: I've gone through years of coping strategies and coming to peace with it; it'll probably annoy you a lot less a year from now than it does today. (I had a really rough run in my teenage years, but these days a cure for tinnitus is kind of only academically interesting to me; I mean, I'd do it, but it probably wouldn't change my life much.)
semitones · 2 months ago
Remarkably, our experiences are _incredibly_ similar. Left ear, about a year, got all those tests done, specialists don't know other than "that's tinnitus for you - if I had a cure I'd be rich", 98% of the time I tune it out, I live in NYC, early thirties.

If you ever find something that works for you, please reply here @tombert, I'll do the same :)

ay · 2 months ago
Back at some point on HN, I saw https://generalfuzz.net/acrn/ - and it seems to be useful at least temporarily - in my and others' anecdata. FWIW.
oh_my_goodness · 2 months ago
I got tinnitus in one ear after using music in headphones to block out other noise. I was probably using the headphones too loud and too often. This happened 15 years ago. It was pretty bad at first. Since then, very slowly, it has mostly "healed" or something. It's still there. But it's much less severe than it was.

I also experienced significant hearing loss around the same time. My hearing had always been absurdly good, but that changed over about a year. Now I can hear well enough to get by, but I really miss what I had. Protect your hearing!

bsimpson · 2 months ago
Earplugs are like condoms:

They make a sensual pleasure less pleasurable, and they also protect against life-altering consequences.

manoDev · 2 months ago
I feel you. Here’s things you can try (in this order):

- Cut stimulant use (coffee, energy drinks) and alcohol

- Drink plenty of water

- Check blood pressure

- Talk to a dentist and check if you grind teeth or suffer from jaw stiffness

- Supplement Magnesium (chelated/glycinate, 300mg/day)

I’m ignoring issues of the ear canal (wax, secretions) since you mentioned it.

Studies point to tinnitus being either caused by changes in blood supply on the inner ear, of neurological origin or trauma. These are all measures I took and greatly improved my case (and when I neglect one of those, it comes back).

mopenstein · 2 months ago
Mine came on when I was about 12 years old and I'm convinced it was brought on by severe anxiety.

At the time my life had changed dramatically. My parents split. Moved to an area adjacent to government housing projects, through which I had to travel everyday to school, and I was, by virtue of unfortunately being wrong color, beaten daily by gangs of hooligans. I ended up sneaking through a slightly wooded area like a South American guerilla until they caught me there.

I couldn't handle it as I was already a sensitive kid and, the parent I ended up with, the other having gone to jail, was compassionless due to their own horrific upbringing. So I had no way of coping which led to total breakdowns and anxiety attacks.

Tinnitus reared it's ugly head soon after which further exacerbated the anxiety.

But the correlation is all speculation on my part because my parent only took me to the doctor a year or so later after much complaining. And only for the tinnitus, not the crippling anxiety.

tombert · 2 months ago
I don't drink alcohol at all and haven't for quite awhile, and my blood pressure is pretty low and hasn't changed significantly. I did try cutting out caffeine entirely for several months (and the tinnitus actually started when I wasn't haven't any caffeine at all).

I do very slightly grind my teeth in my sleep, but in this particular case the problem is basically solved (at least at the dental level) because I have mild sleep apnea so I sleep with a plastic mouthpiece every night anyway.

I'll look into the magnesium supplements.

ectospheno · 2 months ago
I have had tinnitus in my left ear since 2011. You do get used to it. I really only notice when someone says the word or an article on it pops up. I considered setting up some kind of web filter just so I never saw the word again. I notice it now, for instance.

To everyone who doesn't have it, wear ear plugs at concerts, be careful when you remove the ear plugs, and use the max volume limiters on your phones. Enjoy your hearing while you have it.

bluescrn · 2 months ago
> I really only notice when someone says the word or an article on it pops up.

Oh, exactly this. Haven't thought about mine in months, but as soon as I actively think about the subject, suddenly the high-pitch whine in my left ear is back and louder than ever.

jv22222 · 2 months ago
I have found notch therapy to be quite helpful. It's basically where you tune a note to your exact tinitus pitch and then create white noise that has every khz EXCEPT your pitch. Then you listen to the notched sound at about the same level or slightly higher than your tinnitus. So, basically your "tinnitus" is notched out of the sound. The theory is it can retrain your brain to not produce the fake sound. I also just find it helps to alleviate the symptom.

My own tinnitus is 15khz which is annoyingly high. And I suspect the reason why tools like Tinnitus Neuromodulator don't help much in my case.

cpeterso · 2 months ago
There are expensive apps and devices to create notched music or white noise. Fortunately, there are also free YouTube videos with noise notched for different frequencies. Identify your tinnitus frequency using one of the web-based tone generator tests, then find and bookmark the video notched for your frequency.

I like “tinnitusreliever610”. TBH, I haven’t found the notched noise to be any more relief than full spectrum white or pink noise.

https://youtube.com/@tinnitusreliever610

GioM · 2 months ago
I have had tinnitus from an infection, which (very thankfully, and I admit very luckily) slowly resolved over a period of years.

That said, I have experienced occasional reoccurrence. One thing that helps is I ask my masseuse to concentrate on the sides of my neck- there is a specific muscle that when tense can cause ringing.

Does your tinnitus get momentarily worse when you tense your neck muscles?

tombert · 2 months ago
I just tried it, it does not change significantly when I tense my neck muscles.
hyperpl · 2 months ago
Another message of hope for anyone struggling with the possibility of having tinnitus:

I may not be able to fully recount all the factors but I believe my ears may have had some residual fluid after recovering from covid (my covid symptoms were entirely unpleasant and impacted me differently in many ways). Before my ears cleared up, I took a domestic flight where I actually got vertigo for a few 10s of seconds on ascent. My ENT believes my eardrum expanded to touch the inner ear.

The following day I went to a gun range and did skeet shooting for a couple of hours then shot really big guns and sniper rifles. The earplugs I brought myself were likely not adequate and taking them out and putting them in repeatedly in relatively cool weather likely didn't provide the best seal either.

That night or the next day I noticed lots of ringing in my ears and I started to become worried when it was still there even after a week. The worst was being in silent meeting rooms at work where it was most noticeable. It was extremely depressing and I nearly lost all hope.

I visited 2 separate ENTs and each just sent me re-take my yearly hearing test. They didn't really provide any comforting words other than to take the test and wear hearing protection, etc..

Before the hearing test (~2 weeks after the gun range and flights) I explained everything to the audiologist and he said "Lots of people have various degrees of tinnitus/ringing, just don't think about it. I have it and that's what I do. Don't let it bother you and live your life."

Interestingly enough, my audio test came back better than the previous 10 year results and since then I just don't think about it. If I do I can certainly hear it. My only personal takeaway is that the brain and body are very complex and have an arsenal of mechanisms to deal with trauma and that for this particular instance I've been very lucky.

rwyinuse · 2 months ago
I have slightly similar experience. When I was a teenager, I had a random flu shortly before two flights abroad. I didn't feel that sick anymore, but apparently my ears were still badly blocked. On descent my ears would hurt like hell, and I was half-deaf for rest of the day. That was more than ten years ago, and since then I've suffered from moderate tinnitus.

I too got used to it, but I would really advice people to avoid flying sick if they can help it (or at least use some meds to unblock your ears while doing it).

breendreams · 2 months ago
I’m basically in the same exact situation as you, only ringing in my left ear. MRI/hearing/etc tests have all shown nothing and I haven’t received any answer for it. I’ve had it for close to a decade now. NYC definitely helps drown it out but life would be better without it.
Towaway69 · 2 months ago
I had tinnitus before I knew it was tinnitus - I thought it was normal. I literally thought that everyone had a constant sound in their ears.

It was not until someone explained that they had tinnitus and told me their symptons that I suddenly realised that I too had tinnitus.

Since then it's become harder to ignore it but on the other hard, its nice to know that it's not normal and that others can truly hear nothing - something I do wish I could do: hear nothing. I did recently discovered that head under water helps to reduced the sound.

Acceptance has been my treatment for years, I hear it when there is mental downtime. So it does keep me busy (mentally) so that I don't hear it - ironically tinnitus motivates me to do stuff!

technothrasher · 2 months ago
I've had it as long as I can remember. Like you, I thought it was normal. When I was a little kid I thought that was what the Simon & Garfunkel song "The Sound of Silence" was talking about. Since I suspect I've had it since birth, it doesn't bother me. It's just something that is. I feel bad for the folks who get it later in life and have trouble with it. My neighbor got it a few years ago and it keeps him up at night sometimes.
butler14 · 2 months ago
Another message of hope: I'm mid-late thirties and had the exact same. Daily tinnitus from December 2024 through to around August 2025.

I went through MRI etc to no avail.

Then one day I felt something (extremely deep in my ear) just 'release', like a tube unblocking or pressure equalising. And the sound went away and (fingers crossed) hasn't come back since. This was after daily issues for 8-9 months solid.

LeoPanthera · 2 months ago
> 10-hour videos on YouTube of TV static

Please consider a local noise generator. Static is incompressible so you're using quite a lot of data.

cnnlives8387 · 2 months ago
I’ve noticed that if I’m eating more salt, don’t sleep well, under a lot of stress, or taking anything that increases my blood pressure or affects vasodilation (supplements, some foods, stimulants, etc.), it causes me to have tinnitus. Loud concerts / music / sound-reducing headphone / noise can do it also.
tmcz26 · 2 months ago
Look into Ménière’s disease . I got diagnosed recently and those are all triggers for it. When undergoing episodes I also have vertigo. There’s medication for controlling the bigger symptoms.
nobleach · 2 months ago
I'm on that same journey. 8 months ago, I was sitting at my desk and all of a sudden my left ear just went out. The ringing was there. I figured the same that it was wax. I've always had wax issues with that ear that require a doctor's office visit. (trying the home kits has only made it worse!) But this time the doctor came in, looked in the ear and said, "there's no wax at all in that ear". What followed sounds much like your journey. Visits to ENT, CT Scans - waiting on an MRI to ensure there's no tumor... All the while I went from having great hearing to having to say, "say that again" all the time.
semolinachops · 2 months ago
I got tinnitus about 4 years ago in one ear. At first I thought it was stress with a new baby, moving house and a busy time at work. I thought maybe it was wax.

I saw a few specialists, had hearing tests, MRI and CT, and everything came back fine. Couldnt work it out so I gave up for a bit.

Later I went back to my GP and got another referral. This time the consultant asked the radiologist to focus on a specific area. He explained it can show up on a normal scan but unless they know what to look for it often gets missed.

That is when they found I have thinning of the bone over the inner ear called superior semicircular canal dehiscence SSCD.

I wear sleep earphones at night which have been life changing.

3shv · 2 months ago
Is this an ad for Soundcore?
geophile · 2 months ago
I got tinnitus in my late 20s. Forty years later, it's still there. Research into the causes, and treatments, has been disappointingly slow.

I would really like to experience total silence at some point, but that seems very unlikely.

IndySun · 2 months ago
There are lots of interconnecting bits inside and around the ear, and with that in mind...

Can you try something? Find a very quiet place, one where you do hear the tinnitus.

Move your jaw as far to left, and then to the right, and notice if the tinnitus stops, changes, or alters at all.

Next, get a firm hold of your earlobe of the tinnitus ear, and pull and hold it away and at various angles from your head; you can do this earlobe move separately or in combination with the jaw movements.

Do any positions improve the tinnitus?

mft_ · 2 months ago
Exactly the same story for me: right tinnitus just started one day in my 30s; examination, hearing test, MRI all normal. ENT specialist exhausted his diagnostic options then suggested ginger tablets.

It rarely bothers me (although it’s always there) but obviously there’s a cause and I’d like to find it. I have a suspicion it may be somehow related to neck anatomy and/or postural factors (it sometimes seems to worsen slightly with particular positions) in bed but beyond that I’m at a loss.

WanderPanda · 2 months ago
I have a strong Tinnitus on one ear after an ear surgery for 8 years now. And I usually don‘t notice it for months at a time, even though it is there all the time (thanks for reminding me :p) So it’s not as bad as it might feel in the beginning. I‘m mostly bothered by my hearing being generally impaired by it. It sits at ~9kHz but it somehow still makes it significantly harder to comprehend voices.
r2ob · 2 months ago
how did you came with ~9kHz number? I want to know my own LoL
epolanski · 2 months ago
I'm in your situation.

38, came out of nowhere few months ago, seen any kind of doctor, I hear this 24/7 whistle in my ear.

Being in silent rooms or trying to sleep is hard.

jskopek · 2 months ago
It’s been repeated a lot in this discussion, but don’t loose hope. I had a very similar situation and for a while felt like I might not be able to keep living with this condition. A few months later I suddenly realized that I wasn’t thinking about it anymore, and then I had to start straining to notice it. The brain does adapt over time
thekurst_ · 2 months ago
I've had it for years in one ear as well as measured and diagnosed hearing loss in the same ear. At first it would come and go and then it became permanent.

In my experience, I barely notice it on a day-to-day basis.

What I have noticed is that it's worse/noticeable when after a night of drinking and if I'm tired/stressed.

bad_haircut72 · 2 months ago
Im curious did you also experience hearing loss? I started getting tinnitus in my left ear almost 12 months ago, but 12 months before that I started noticably losing hearing in my left ear (with audiology tests to back it up, Im basically deaf in one ear now). Also mid 30s.
tombert · 2 months ago
Nope! I haven't really noticed any significant loss in hearing at a "vibes" level, but I actually got my hearing tested in both ears to be sure, and my hearing is actually slightly better than the average 30-something.
nswest23 · 2 months ago
I am pretty sure I've had it my entire life and for a long time I just thought it was the background noise of the universe. Never bothered me till I figured out that wasn't the case.
sixtyj · 2 months ago
Kids told me that I am losing my hearing. So I went to hearing lab. When I told doctor that I have tinnitus in left ear for almost 10 years, he recommended lorazepam in tough times… that it works. :)
gridspy · 2 months ago
Note - Lorazepam is one of those drugs which causes dependance if you use it regularly. If you find you need it often, get a substitute which is safe to use all the time.
stubish · 2 months ago
Did you have Covid a short while before noticing? One of the not uncommon but under reported side effects is permanent hearing loss, which associated fallout such as tinnitus.
xtiansimon · 2 months ago
Have you had dental work recently? Do you have a stiff neck? I’ve heard from other here that inflammation from dental work caused their tinnitus.
everyone · 2 months ago
I tried Lenire and it didnt do anything, probably made it worse. Been doing CBT (Cognitive Behavioural Therapy) and I seem to be making some progress with it.
emeril · 2 months ago
maybe see "Won-Taek Choe" - he's a legit smart hearing specialist ENT on UES

that said, prob nothing to do other than wait and hope for the best really

when i had tinnitus following an ear infection years ago, it lasted several months and gradually went away but I always had at least white noise around me and some people say "notch" therapy can be helpful...

pests · 2 months ago
Same situation, basically went away a year later on its own. Every once in a blue moon or when I’m at the boundary of wake|sleep or sleep|wake I’ll kinda hear it again but I find if I just acknowledge the sensation, move on and continue what I was doing - it’ll be days or weeks until I remember it even happened. Focus on it less.
mrblah · 2 months ago
this is anecdotal and not medical advice, but i reduced my tinnitus symptoms by ~90% by taking therapeutic doses (1200-1800mg/day) of benfotiamine (fat soluble form of vitamin b1) over the course of a month and a half.

i was taking it for unrelated nerve pain and was very surprised that my sense of smell and hearing also remarkably improved, to the point where i needed to reduce the long standing 'known' audio levels of all my various listening gadgets a few clicks. the ringing was a little worse for the first couple weeks, but then reduced a couple more weeks, then almost completely stopped 1 day.

from what i gather, high doses of the fat soluble form of vitamin b1 can repair nerves and is used as first line therapy in some countries for neuropathy, chronic pain and even alzheimers.

i'm sure it won't help everyone, i can't even find any solid research on tinnitus and benfotiamine, but putting this out in the ether since it is a cheap and relatively safe thing to try, i was completely surprised by this nice off-label side effect (it did help with my nerve pain as well). there is much more research based evidence on benfotiamine therapy for other nerve problems, and it follows that hearing and smell would also be affected, it's all nerves, good luck

edit * adding if you are taking high doses of benfotiamine, you should also be taking magnesium with it, i just took zma (zinc, magnesium and b6) at bedtime *

cyberpunk · 2 months ago
Absolutely anecdotal, but my left ear tinnitus recently cleared up and ive been taking a b complex for a couple of weeks for unrelated reasons... Wild.
OutOfHere · 2 months ago
Even 80 mg of benfotiamine a day is too potent for me, giving me anxiety. 40 mg is more tolerable. I do take plenty of magnesium, zinc, and P5P. Be careful taking the basic non-P5P form of B6 because it risks causing serious neuropathy in the long term. Benfotiamine is more for managing damage from high glucose. I acknowledge your experience, but if your nerve damage is not from metabolic concerns, I am skeptical.

Why not use lipothiamine or occasionally sulbutiamine instead for this purpose?

wppick · 2 months ago
Try experimenting with diet like cutting out/down on sugar or salt and see if it makes any difference. There's no strong evidence that EMF can cause tinnitus but would be interesting to test that out somehow too (camping/cabin trip in a radio free zone?)
mjsabby · 2 months ago
I got it at 39, still have it, you'll be fine.

Dead Comment

brianhama · 2 months ago
I suddenly lost the hearing in my left ear at the age of 24. One moment I was fine, eating a slice of pizza, the next moment I suddenly could sense something was wrong. I tried to stand up and walk, but my balance was gone. My ear felt full and there was a strange metallic echo. I waited about 24 hours and it hadn't gone away, so I went to the urgent care. By that time, just standing up was enough to cause me to vomit. I've had a pretty healthy life, so everything that was happening was rather disconcerting to me!

The doctors at urgent care erroneously diagnosed the problem as dehydration as a result of my telling them I had played tennis earlier before the incident. They sent me home with instructions to drink lots of water. After waiting another 48 hours completely unable to hear or even stand up, I went back to the urgent care. This time, they diagnosed it as an ear infection and gave me antibiotics. Over the next two weeks, my balance slowly returned, but what little hearing I still had slowly deteriorated further. About a month after it started, I finally was referred to an audiologist that concluded that I was completely deaf in my left ear, possibly due to a viral infection, but there isn't any way to know for sure the cause. Had it been treated with steroids immediately, it might have saved my hearing.

I am now 40 years old and have lived with being single sided deaf for half my life. Initially I didn't think much of it. I've slowly realized it has had a profound impact on my personality and sense of identity. I am much less social due to the difficulty I have hearing in group settings. Conversations are frustrating because it takes so much effort to hear the other person properly. I am reluctant to tell people about my condition because I don't want to be seen as handicapped in any way. Usually by the time I do end up telling someone, they say they had already figured as much.

Tinnitus is a major daily issue as well. I can’t seem to understand how this website helps though.

Cerium · 2 months ago
My wife is deaf in her left ear as well. She doesn't usually tell people, but does tell people that she likes to walk on the left and sit on the left side of rectangular tables.

One interesting effect is that I have developed a preference for sitting or walking on people's right hand side, especially with good friends or people I respect.

The most interesting effect is I have noticed how much people take for granted the ability to sense where sound is coming from. Early on in our relationship I would occasionally perform "magic tricks" where I know immediately where a sound is. She would ask: how did you know where it was?

nozzlegear · 2 months ago
> One moment I was fine, eating a slice of pizza, the next moment I suddenly could sense something was wrong. I tried to stand up and walk, but my balance was gone. My ear felt full and there was a strange metallic echo. I waited about 24 hours and it hadn't gone away, so I went to the urgent care. By that time, just standing up was enough to cause me to vomit. I've had a pretty healthy life, so everything that was happening was rather disconcerting to me!

This mirrors what turned out to be the onset of my pulsatile tinnitus – especially the "strange metallic echo". I remember sitting at my desk listening to the radio when I noticed it sounded like the radio's speakers were slightly out of sync with each other. I took my headphones off and listened, and my coworker's voice sounded metallic and robotic, almost exactly like a dalek from Doctor Who.

By the time I got to the doctor (same day), the metallic echo had passed but I had that fullness feeling in my ear that you describe and my doctor couldn't diagnose. Long story short, I'm not completely deaf but I have reduced hearing and permanent pulsatile tinnitus in my right ear.

I've had regular tinnitus since I was a kid, and I've thankfully been able to adjust to hearing the sound of my own heartbeat in my ear at all hours of the day without too much trouble. But when I describe what it's like to friends and family, I like to joke that it's like the heartbeat in Edgar Allan Poe's The Tell-tale Heart.

> I am now 40 years old and have lived with being single sided deaf for half my life. Initially I didn't think much of it. I've slowly realized it has had a profound impact on my personality and sense of identity. I am much less social due to the difficulty I have hearing in group settings. Conversations are frustrating because it takes so much effort to hear the other person properly.

My reduced hearing has affected me more than I thought it did, and I've only come to realize it very recently. It's difficult for me to help my wife with her birding hobby because I'm always pointing in the wrong direction, for example. It also takes a lot of my patience not to get irritable when she's trying to talk to me while we're watching tv or listening to a book in the car, because I have a hard time tuning out things I can hear in my good ear and focusing on her with my bad ear.

r2ob · 2 months ago
I've had tinnitus since 2018. I got used to it. it's not the worst thing for me. I'm 5'2" bald guy LoL

If you're suffering from tinnitus, remember, at least you're not bald and 5'2" tall.

gigatree · 2 months ago
My condolences. At least you’re jacked.
grugagag · 2 months ago
Tinnitus is extremly annoying when you remember about it but as soon as your attention goes elsewhere it’s almost not bothering at all, you’re so used to it that it’s hard to notice it.
jamiek88 · 2 months ago
Well shorter guys live ~5 years longer it appears so you've got that going for you!
butlike · 2 months ago
Be nice to yourself. It's the only way.
Refreeze5224 · 2 months ago
MyNoise.net is such a great site, consider throwing them a couple bucks, it's basically a pay what you can model. I can't count the number of hours I've spent programming listening to their different soundscapes, rain on a tin roof, and cafe noise are 2 of my favorites.
mk_stjames · 2 months ago
Absolutely. I have a person favorite setup... which is to have these two playing at the * same time * and play around with the combos of sliders / set to automate.

Pair: https://mynoise.net/NoiseMachines/numberStationsRadioNoiseGe... with: https://mynoise.net/NoiseMachines/magicDuneArrakisGenerator....

I set the numbers stations to 'narrow' and Arrakis to 'wide' and stereo field, mute the numbers stations that repeats german numbers (those stand out to me too easily)... and it's like some magical productivity hack of my brain.

robotguy · 2 months ago
There's some really neat stuff that can be done with automation and Custom Super Generators. I call this one "Frequency Drift": https://mynoise.net/superGenerator.php?g1=custom.php%3Fc%3D1...
sklargh · 2 months ago
Many of my biggest professional achievements were enabled via Irish Coast. I give them a few dollars a month.https://mynoise.net/NoiseMachines/windSeaRainNoiseGenerator....
klondike_klive · 2 months ago
We played the gregorian chant for about an hour every night when my kid was newborn. Not sure if it had any effect on him but definitely lowered our blood pressure!

The white noise generators were also a lifesaver when working in a busy open plan studio with loud idiots.

Arch-TK · 2 months ago
I've had a low grade (although who knows, it's not like I can hear someone else's tinnitus to compare) tinnitus for as long as I remember. For my childhood I thought it was just normal to hear this noise when there was no external source of other sound.

Honestly, I never felt particularly negative about it.

I guess if you never know what true silence sounds like, you never know what you are missing.

EvanAnderson · 2 months ago
Similar story here. I hear something like CRT whine all the time (except higher than the typical 15Khz NTSC tube whine). When I was a kid I played with the SOUND statement in GW-BASIC and figured out my tinnitus s was between 17 and 18 Khz (listening for bleating interference between my laptop speaker and the tinnitus). Today my hearing tops out between 12 and 13 Khz but I assume the tinnitus whine is still the same old frequency.

My daughter has it, too. My wife doesn't, but my daughter has described it to me.

I haven't felt negative about it except for the time I visited an anechoic chamber exhibit at a local museum (COSI in Columbus, OH) in my early 40s. It really messed with my perception and the tinnitus was much louder than normal for days after. Even thinking about it makes me edgy.

VPenkov · 2 months ago
Same here. A few years ago I thought maybe the ringing isn't normal. It hadn't occurred to me before that.

I found a YouTube video of a "tinnitus demo" with the right sound and frequency. I could only start hearing it at about 80% volume. I gave my headphones to my partner and she said it was unbearable. I guess I'm used to my normal.

I slightly regret knowing about it, I seem to be paying more attention to it now.

Barrin92 · 2 months ago
I think that's most people. I never even knew that I had tinnitus (still don't know if I do frankly) because if you've put me in a dead silent room I've always heard some very low kind of 'static' for a lack of a better term. Most people I've ever talked to say the same thing, very few people have ever told me they hear absolutely nothing. Only after I kept reading about it did I start to notice it more, I think there's a really big psychological element to it.
Arch-TK · 2 months ago
Tinnitus (at least mine) sounds like a quieter version of the high pitched noise that movies like to use to emulate tinnitus due to a loud noise (explosion).

It's a quieter version of the tinnitus you can personally get if you are close to a loud noise (don't do this intentionally, it is an indication that you've caused yourself some hearing damage).

I've never heard static, I think that honestly sounds closer to what might actually be termed a noise floor. I know what a noise floor sounds like, and I've never heard a noise floor just due to quiet conditions...

IDK, like I said, unfortunately science hasn't found a way to easily and temporarily swap ears.

brandonmenc · 2 months ago
Same.

I'm half convinced it's something like blood vessels too close to sound receptor thingies in my ear. Or something similar.

I had a hearing test done a few years ago and my hearing is actually slightly above average for my age.

It would be nice to not have it, but whatever.

Arch-TK · 2 months ago
My hearing is still great, and I haven't noticed it deteriorate (I'm 29, and I've always been careful with my ears as I value having good hearing). I can hear switching noise (from power supplies) and those animal/human deterrent devices.

I don't think my tinnitus is from hearing damage.

joshdavham · 2 months ago
The way I personally manage my tinnitus is by having fans constantly blowing in various rooms of where I live, for example I have a fan in my bedroom when I’m trying to sleep or in my office when I need to concentrate.

The fans don’t totally block out the tinnitus, but they sorta act as an undistracting distraction.

tptacek · 2 months ago
Same, for going on 40 years now. I can sleep without some kind of white noise, but it's really challenging. I have one of those Dohm thingies, which has been relegated to my office; in our bedroom we've got an air purifier and I have a tiny desk fan on my nightstand.

I've found that stuff like this site and therapy approaches like it tend to make me hypervigilant about my tinnitus, which is exactly the opposite of what I want. My tinnitus is moderate-severity (it's loud but never competes with real sound) and just by keeping background noise around I'm at a point where I think about it maybe a couple times a week tops; most of the times I'm persistantly thinking about it, it turns out I have a sinus infection or something.

riedel · 2 months ago
While I can normally tune out my Tinnitus, i also love the constant city noise and in my office I have a collection of solar toys that keep clicking randomly, which help me focus. Actually I tried the OP site and trying to tune the thing actually made my Tinnitus pretty unbearable ATM. I guess the trick is to use it without trying to directly hear the effect...
objektif · 2 months ago
What type of fan is best for this? Box fans or the round powerful ones?
tptacek · 2 months ago
If you're interested in optimizing, the Dohm classic "sound machine" isn't very expensive (maybe 2x what a decent fan costs), is portable/packable, has tunable sound, but is fundamentally just a fan that doesn't move air around your room.
bwanab · 2 months ago
It's different for different people. The air purifier method suggested works for me, but any fan is better than no fan.
emil-lp · 2 months ago
You can buy an air purifier, like IKEA FÖRNUFTIG.
DrewADesign · 2 months ago
Have you tried the Dohm mechanical noise machines? The original white noise machine AFAIK. Might be a little more power efficient while still making sound by moving air rather than a speaker.
amelius · 2 months ago
Look up "pink noise".
janmo · 2 months ago
The only way to temporarely get rid of my tinnitus (completely gone or at least very reduced for up to 30 seconds) is to listen to this beep tone from 8 to 12 KHZ: https://www.youtube.com/watch?v=qNf9nzvnd1k

apparently the phenomenon is called residual inhibition. If only there was a way to make this work permanently...

tptacek · 2 months ago
Whoah, that's weird. I listened to the whole sweep just so I could match it to my tinnitus (turns out: about 10khz), but when I paused it to re-evaluate my own tinnitus, it wasn't there. I mean, it's back now. But still, weird.
atombender · 2 months ago
Works for me, too. Interestingly enough, playing the Tinnitus Neuromodulator for 20 seconds (with certain sliders set and some off) also works.
conception · 2 months ago
https://youtube.com/shorts/YyT9ZwWy5Jc?si=PoDNVQ4ox24_RW-l

Also works pretty great. If I need a few minutes of actual silence I use that. I think people using TENS and other therapies are basically stimulating the same nerves to treat it.

sumedh · 2 months ago
I dont hear anything about 13K Hz while my kid claims he can hear it :(
lexx · 2 months ago
Have tinnitus 20 years now. Very loud. Can hear it in cinema while watching action movies. First year was depressing. I couldn't believe I will never enjoy silence again. Now I don't care. It's my little friend. Really. Life can be amazing even with extreme tinnitus
megadopechos · 2 months ago
Same. I got it when I was 19 from recording music and the audiologist said, "This is something only old people get, and even then very gradually. You will either go crazy or depressed." But I've gotten used to it and I wouldn't say it's been a huge detriment.
diego_sandoval · 2 months ago
> This is something only old people get

Such a lie. I started getting mild tinnitus at 20 from playing in rock bands. Then at 24 it got less mild from partying. Then at 27 it got worse, I don't know why.