Readit Newstunn3l commented on Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs youtube.com/shorts/2ntx91... · Posted by u/m348e912
I'm 22 years old and suffer from Long COVID for 3 years now. I've written a bout my experience on my blog: https://tunn3l.pro. although not bedridden, my life got totally flipped upside down. I just want to live a normal live again. To all ME/CFS and LC sufferers: Don't give up!
tunn3l commented on The brain has its own microbiome newscientist.com/article/... · Posted by u/janandonly
I have a genetic partial immunodeficiency (PNP Deficiency) and I constantly get fungal infections. Living in warm, humid climates is a challenge for me.
Reading just the beginning of that article "she experienced chronic pain, digestive problems and a cardiac arrhythmia", well, that is my life. I constantly have minor aspergillosis, and I have some lung nodules from some past fungal infections as well.
Keeping the microbiome under control is all about a healthy immune system.
But since my disorder affected my mental state they just labeled me as a psychiatric case and did not look any further, If anyone here is a doctor, please do not give up on psychiatric patients. Thanks.
Interesting case here:
Aspergillosis of the central nervous system in a previously healthy patient that simulated Creutzfeldt–Jakob disease
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5180434/
"He was admitted to the hospital with an occipital headache which he had endured for 2 months. For over 1 and a half months, he had also experienced behavioral disorders and a disruption of higher mental functions. He had retrograde and anterograde amnesia with both echolalia and the presence of visual hallucinations. "
Hey!
Reminds me a bit of myself. After 2 COVID infections and 3 vaccines, I began experiencing digestive problems, sleep disturbance, fatigue and severe brain fog. I also was often dismissed by the doctors as simply being depressed. But I now know that I have long COVID. The fight against it is still ongoing and you can read about my struggle with it here: https://tunn3l.pro.
I'm currently working with my girlfriend on a sticker campaign to educate people on these illnesses (esp. me/cfs) in order to remove the Stigmatisation that many patients with similar symptoms expierience.
I'm currently working on an Art Project stemming from the mixture of cellular automata and neural networks in Rust. The YouTuber Emergent garden has already implemented this idea but I wanted to go much deeper. With different coloring algorithms, neuron types, time travel values, arbitrarily connected networks, crazy activitation functions etc. I just uploaded a very short showcase of it here:
https://m.youtube.com/watch?v=S-D2dOTHpzo
Watch my blog https://tunn3l.pro for the full project release!
Cheers!
tunn3l commented on Found: The dial in the brain that controls the immune system nature.com/articles/d4158... · Posted by u/andreareina
Would be great to see another avenue of possible treatment for ME/CFS.
https://en.m.wikipedia.org/wiki/Myalgic_encephalomyelitis/ch...
yes it sounds like a step in the right direction! For people like me who suffer from long covid (mainly cognitive problems and fatigue), this is real good news.
I am suffering from LC myself for 2 years now. The Brainfog is intense, the fatigue tiring. I'm mentally really low. It's nice to see some news regarding COVID.
My story is on my blog https://tunn3l.pro