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Posted by u/apatheticonion 2 years ago
Ask HN: Is there a webapp to input/store your blood test results?
Aside from excel/Google Sheets,

Does anyone know of a web app (preferably) that lets you manually input blood test results?

The hope is a service that creates graphs of historic records, provides reference values comparison, unit conversion, and offers insights (like what high/low values could indicate)?

analogj · 2 years ago
Fasten Health [1] is an open-source, self-hosted, personal/family electronic medical record aggregator, designed to integrate with 100,000's of insurances/hospitals/clinics.

It's designed to automatically pull your medical records from your EMR -- but users can also enter their conditions, medications and procedures manually. We have plans to allow users to manually enter their lab results [2], however that feature has not been implemented yet.

Fasten is still a work-in-progress, but if you're willing to contribute we have a pretty active discord (linked in the README).

[1]: https://github.com/fastenhealth/fasten-onprem/ [2]: https://github.com/fastenhealth/fasten-onprem/issues/137

mfkp · 2 years ago
Awesome project. Was poking around to see how the sources are generated, but it seems like the repo doesn't exist (or was made private)? https://github.com/fastenhealth/fasten-sources-gen
analogj · 2 years ago
ah, it's not super interesting. Most EMR systems provide an open list of FHIR endpoints for their customers. `fasten-source-gen` is basically an ETL repository which imports the endpoint metadata provided by these EMR systems and enriches it with data from NPPES, Google Maps, user contributed data, Mechanical Turk and elsewhere.

- Epic: https://open.epic.com/MyApps/Endpoints - Cerner: https://github.com/cerner/ignite-endpoints

It will be open sourced (eventually) -- once I've cleaned up some test credentials that were inadvertently committed to the repo.

Hope that answers your question?

layer8 · 2 years ago
This is probably specific to the US? It would be nice for the Readme to clarify that aspect.
analogj · 2 years ago
Hey! It is definitely US-centric, however FHIR (the protocol that Fasten speaks natively) is an international standard. We're tracking international support in this github issue - https://github.com/fastenhealth/fasten-onprem/issues/42

However, we'll make sure to update the README to make it clearer that international providers are not supported yet.

relyks · 2 years ago
If you're looking for a well-integrated web app product that isn't something you can run locally on your computer, Picnic Health [1] is really good at this. They import all your medical records from the providers who use electronic health record systems with APIs and collect your medical records from the providers that don't use those systems or aren't as technologically savvy. They digitize everything and put it in a timeline format. Their service is not cheap though.

[1]: https://picnichealth.com/

jeremyw · 2 years ago
Note they misuse the term end-to-end encrypted, and apply it to mirroring "what banks do". I don't know anything else about their product, but this is sloppy and/or dishonest.
replwoacause · 2 years ago
I’ve had so many doctors over the years and have lived in many different states. Does Picnic Health find my records even if I can’t recall my doctor’s names or do I have to tell them every office they need to contact? I’m not sure if doctors report patient records to some central authority, which would obviously make this work much easier.
relyks · 2 years ago
I'm not sure. I used the service in the past and I'm considering using it again. Picnic Health is really great if you're seeing a lot of different doctors over a short period of time or you have a health issue that involves coordination of a lot of records. It's really a pain to deal with different offices to get your medical records exchanged.

However, I was surprised when I used it last. They were able to find doctors that I didn't report. Turns out a lot of doctors are part of networks in geographical areas that allow sharing of medical records. They might've also used my insurance provider. If you see doctors with insurance, the insurance company will also have a record.

I don't think doctors are required to report patient records to a central authority. The government is able to access medical records without a warrant though. They might have a centralized way of knowing which doctors a person has visited.

vinner_roy · 2 years ago
This looks fantastic. Thanks for sharing! Great demo here: https://demo.picnichealth.com/records
ipunchghosts · 2 years ago
Came here to say this I love this service.
Cfu288 · 2 years ago
While a good looking service, it seems pretty expensive unless you’re willing to donate your data to research?
relyks · 2 years ago
Yeah, when I used it in the past, that was the case. However, when I used it, they didn't have donating your data to research as an option. Look here: https://help.picnichealth.com/t/y4hh8lr/how-much-does-picnic...

It's free if you have one the conditions they're looking for or they accept you to be part of a research group

Nerada · 2 years ago
After noticing Apple Health doesn't let you track this data at all (very strange decision on their part) I contemplated building an app... But Excel is easier and serves the same function. Conditional highlighting, charts, trends, it's all there.
cjensen · 2 years ago
Apple Health tracks the data. It just doesn't provide graphs except for the most common variables. I'm not really sure why no one makes a graphing app that works off HealthKit data
bigiain · 2 years ago
<cynical view> Because that's totally a thing Apple will release (or bundle into an existing app) as soon as it gains any popularity...

<sightly less cynical view> There's been persistent rumours for a few years now that Apple are working on blood glucose sensing for Apple Watch. If those rumours are right (and a big part of me really hopes they are) then that'd likely come with built in apps that destroy every blood glucose related 3rd party app.

Edit: I just noticed the original post wasn't specifically blood _glucose_ related. My own "blood test" requirements made me jump to an erroneous conclusion...

KMnO4 · 2 years ago
A while ago I was looking for this and found “Heart Reports”. Despite the name, it can make graphs from several sources that it pulls from HealthKit.

https://apps.apple.com/ca/app/heart-reports/id1448243870

No affiliation with the app, just a user.

Nerada · 2 years ago
Blood test results? I couldn't find anywhere to input the data manually. I track everything else there, like blood pressure, but serum iron, ferritin? Transferrin? Albumin? Etc. Nothing. Am I blind?
greggsy · 2 years ago
You can make your own with Charty, which can pull data from HealthKit
westoncolemanl · 2 years ago
Dashlabs.ai https://www.ycombinator.com/companies/dashlabs-ai

We work with diagnostic laboratories in the Philippines. Besides blood tests, we let users input results for clinical chemistry tests, x-rays, and more. We're also able to pull results straight out from hematology analyzers and other diagnostic equipment.

We also provide delta checking (comparison of your current vs past results), reference range checks, and unit conversion. We don't offer insights, but it is something we can build with a large enough dataset.

Hit me up if you're interested!

nickmandal · 2 years ago
I built a platform called Iterate (https://www.iteratehealth.com) that allows you to track blood tests and other biomarkers including VO2 Max, DEXA Scan.

Some of the specific biomarkers you can input into the platform include LDL-C, HDL-C, Triglycerides, Non-HDL-C, VLDL-C, TG/HDL-C, Total Cholesterol, Lp(a), ApoB, ApoE, Homocysteine, hsCRP, Uric acid, Fasting Insulin, Fasting Glucose, OGTT, Hba1c, Campesterol, Sitosterol, Lathosterol, Desmosterol, TSH, fT4, fT3, rT3, ATA, ATPA, Estradiol, FSH, LH, SHBG, Testosterone, Free testosterone, PSA, ALT, AST, Total bilirubin, Cystatin C, eGFR - Cystatin C, Hb, Ferritin, Omega-3, and Vitamin D.

Once your blood test results are inputted, the system enables graphical representation of your historical records. This can help visualize trends over time, potentially revealing patterns or changes that might otherwise remain unnoticed. It also provides reference values for comparison, making it easier to understand where your results sit within the broader context (for things like gender/age).

It also tracks metrics across sleep, exercise, nutrition, emotional health using data from your wearables.

nikhilyadala · 2 years ago
I made Free-to-use android (https://www.bit.ly/healome-one) and ios (https://www.bit.ly/healome-ios ) apps that can read (through OCR) the blood test results and plot the graphs. You can also enter the data manually if you can't access your pdfs. The app also connects with werables and plots correlations of the markers with the werable metrics. These apps are still under construction and have several bugs, but still usable. (More details at https://www.new.healome.one )
vivegi · 2 years ago
I had a similar requirement several years ago and I settled on the service provided by my test lab. They are a large chain in India and their reports plot the trend of all the test report indicators along with baseline reference values and interpretations. Very useful for me and my doctor.

Yes, it isn't a complete interoperable EMR solution, but I kinda manage it myself by downloading the PDF reports and maintaining in my local electronic filing system. There is always some esoteric test that the doctor could order which has to be done at a specialist lab. So, my low-tech solution settles on PDFs of the reports. It works for 99% of the cases.

At least the trend in India is to lock all of this data into proprietary data silos.

There is an initiative in India currently underway to provide a digital health ID and an ecosystem for healthcare participants to share data Ayushman Bharat Digital Mission (ABDM). It is yet to take off in a big way (and hopefully it does in the next 4-5 years) and achieves the same kind of success as the payments infrastructure by NPCI that brought the UPI network.

deathhand · 2 years ago
I found a provider (NYU Lagone) that uses Epic since early 2010s.

I've heard problems with people who use the tool but as a patient to be able go see a decade plus of my hospital visits, checkups, scans, and x rays is pretty amazing.