noodleman (u/noodleman)

noodleman commented on Taking my diabetes treatment into my own hands martin.janiczek.cz/2024/0... · Posted by u/mjaniczek

dbspin · a year ago

I feel your pain, but 'threats of criminal punishments for lazy medical professionals' isn't a great idea. There are already laws against medical malpractice, but it's pretty obvious why prosecuting doctors and nurses for 'laziness' would be incredibly counterproductive and result in a massive increase in bureaucratic ass covering rather than improved care. Ask yourself - what caused the NHS to get into this situation? Certainly reversing those causes would be a good first step to improving the service and fixing the issues they've caused. According to the doctors and nurses themselves, it's all about cost cutting, increases in hours and generally the financial starvation of the service. They're literally out there striking to be allowed to treat you better.

https://news.sky.com/story/the-nhs-sold-out-its-staff-doctor...

https://www.telegraph.co.uk/news/2024/05/15/doctors-forced-t...

https://www.bbc.com/news/uk-england-birmingham-64938278

noodleman · a year ago

Those are junior doctors on dirt pay. Consultants earn up to £95k a year.

noodleman commented on Taking my diabetes treatment into my own hands martin.janiczek.cz/2024/0... · Posted by u/mjaniczek

rhinoe · a year ago

This is a surprising view given that I'm T1D in the UK and the healthcare I've received, along with the tech, support and collaboration with diabetic consultants has been first class. You are making an assumption that every doctor is like the one you have (I guess), but its simply not the case.

Good luck with your programming, but the agenda you're pushing for it is remarkably short-sighted.

noodleman · a year ago

I've had 4 consultants over the past 10 years. The first, who was forward thinking and kept up with the latest in the field, helped me acquire an insulin pump. Sadly, I had to transfer clinics when I moved across the country and have never had another consultant that helpful.

noodleman commented on Taking my diabetes treatment into my own hands martin.janiczek.cz/2024/0... · Posted by u/mjaniczek

sgt101 · a year ago

This is counter to my experience - my daughter has received fantastic care. We have regular time with the endocrinologist and get phoned up inbetween clinics. They have provided a closed loop system and all the backup we could have asked for.

I agree about Glooko, it's not as good as diasend was.

noodleman · a year ago

This was my experience when I was first diagnosed, too (minus closed loop - it was the early 90's). They put more effort in with children, as it's a dedicated team. Same as gestational diabetes care.

Expect to start having appointments cancelled and to go years without hearing from them once she is passed to the adult diabetes team.

noodleman commented on Taking my diabetes treatment into my own hands martin.janiczek.cz/2024/0... · Posted by u/mjaniczek

hollerith · a year ago

>The starting salary for a first-year doctor is below the national median income

Here you are comparing a doctor at the start of their career with a population consisting mostly of workers with decades of experience.

noodleman · a year ago

Diabetes consultants can earn salaries up to £95k. Far from what junior doctors earn.

noodleman commented on Taking my diabetes treatment into my own hands martin.janiczek.cz/2024/0... · Posted by u/mjaniczek

mapt · a year ago

You guys are decades deep into an ideologically propelled plan to "Starve the beast" by denying the NHS funding so that care quality declines, and use that as justification to privatize the NHS entirely.

The starting salary for a first-year doctor is below the national median income, and for a nurse significantly below. Their inability to requisition funds & time for care is something there is repeated labor action about. The NHS budget is 5.9% of GDP versus the 17.3% of GDP that the US economy spends on healthcare or the 11.3% of GDP that the UK economy spends on healthcare overall.

Maybe more funding will fix it?

noodleman · a year ago

My diabetes consultant is on more than the national median income and only works part time in a low cost of living area of the UK. They are far from hard done by. Throwing money at them will not change what is effectively a systemic error in how they approach the disease.

The NHS is underfunded, but this isn't a problem of funding. The lack of a scientific approach to managing diabetes is strictly down to ineptitude.

noodleman commented on Taking my diabetes treatment into my own hands martin.janiczek.cz/2024/0... · Posted by u/mjaniczek

noodleman · a year ago

I'm T1D and currently working on something like this because diabetes healthcare in the UK is effectively non-existent past diagnosis.

Managing the condition isn't too difficult after 30 years of it, but dealing with the politics of NHS diabetes care is astronomically more difficult than it was in any decade previously. In my experience, if you are not pregnant, or you aren't at risk of passing out in the next 15 minutes, they don't care. Whatever long term consequences you experience are another department's responsibility.

A trend I've seen is that younger diabetes nurses and doctors are extremely dependant on tech (CGMs, insulin pumps), but don't comprehend how they work or what the data means. They don't know what patterns to look for beyond a 24hr window and generally seem to think everything is a bolus ratio or basal problem, overlooking other settings such as correction factor, duration, etc.

Because they are tech illiterate, vendor lock-in is becoming an issue, as no health tech companies want you using another tool except the one they get paid for. So I find myself being swapped from platform to platform as they change my devices every year or so, each one being less workable than the last. Glooko only allows 6 months of historic data to be viewed, and only through their web UI. Abbot refused to let me download my data after I was forced off their platform to Glooko. I was happy on Tidepool, but it doesn't work with my current set of devices.

No, more funding will not fix this. Threats of criminal punishments for lazy medical professionals and unlimited fines for anti-competitive behaviour from diabetes tech manufacturers will.

noodleman commented on Apple found in breach of EU competition rules theguardian.com/technolog... · Posted by u/malermeister

WheatMillington · a year ago

You point out that there's actually a lot of competition, but that consumers prefer Apple. Isn't this contrary to your greater point?

noodleman · a year ago

It's hard not to prefer the ecosystem that is designed to make it as painful as it can be to switch to a competitor.

noodleman commented on Windows 11 is now enabling OneDrive folder backup without asking permission neowin.net/news/windows-1... · Posted by u/josephcsible

Syonyk · a year ago

> ...to get new PC gamers onto an alternative for there to be a considerable shift away from Windows.

Have you tried Steam on Linux? It works amazingly well, either with native Linux support in games or through Proton support (their Windows emulation layer). Quite a few people I know have gone that route and are shocked at just how well it works in practice.

noodleman · a year ago

I'm all in on Linux at this point - it's been usable for a long time.

My comments not really about whether it works, as we know it does, it's about how we go about getting the word out there.

noodleman commented on Windows 11 is now enabling OneDrive folder backup without asking permission neowin.net/news/windows-1... · Posted by u/josephcsible

whalesalad · a year ago

Seems like every 48-72 hours now Microsoft announces yet another extremely compelling reason to abandon their platform for Linux.

noodleman · a year ago

They've been at it for years. I'd genuinely be surprised if this cracked the top 10 worst things Microsoft have done to Windows users.

I think there would need to be a concerted effort at a grass-roots level, say from r/buildapc, to get new PC gamers onto an alternative for there to be a considerable shift away from Windows.

noodleman commented on The case for not sanitising fairy tales plough.com/en/topics/cult... · Posted by u/crapvoter

troupe · a year ago

I agree with the overall idea of the article, but it is important to recognize that our modern assumptions make us think there is a particular version of a fairy tale that is the "correct" or "original" version. Stories handed down orally are likely changed in each telling to better fit their audience, so in that sense, the way fairy tales were told almost always included some type of sanitization or embellishment depending on who was listening.

noodleman · a year ago

This is actually an interesting point. There's a tendency to assume that the core of a story is the same, even if the way it's told is different. I wonder how many generations of retellings it takes for us to notice significant differences.